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Old 07-30-2008, 03:35 PM   #81
hey macarana!
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Default Re: Some Profile Pages Could Cause Seizures!!

View Post Originally Posted by Dixiecup
How common is photosensitive epilepsy?

Around one in 131 people have epilepsy and of these people,We have 100,256 members on this forum. (that means that we MAY have 7653 people on this forum who are Photosensitive) up to 5% have photosensitive epilepsy (this means that we have 383 people who WILL have a seizure from these pages!)
This is when seizures are triggered by certain frequencies of flashing lights or contrasting light and dark patterns such as stripes or checks.
Photosensitivity is more common in children and young people and is less commonly diagnosed after the age of 20.
Most of our members ARE in this median age group.
How can I tell if I am photosensitive?

Many people find this out because they have a seizure when exposed to flashing lights or patterns.
A tonic clonic (convulsive) seizure is the most common type of seizure to be brought on by photosensitivity, although this may vary from person to person. If a seizure happens due to photosensitivity, it will normally happen straightaway.
Some people with photosensitive epilepsy also have seizures that are not triggered by flashing lights or geometric patterns, while other people may only have seizures due to this trigger.
When an Electroencephalogram (EEG) is carried out, a flashing light test, called photic stimulation, will often identify if you are photosensitive. The light test is stopped if it looks like you might have a seizure.

What frequency of flashing light is most likely to trigger a seizure?

Between five and 30 flashes per second (hertz) are the common frequencies to trigger seizures, but this varies from person to person. (Most of these pages that Gingerly is talking about have intermittent flashes of one every TWO seconds, the potential for CAUSING a seizure is HIGH RISK in these cases.)
While some people are sensitive at higher frequencies than 30 hertz, it is not common to be sensitive below five hertz.
What patterns are most likely to trigger a seizure if I am photosensitive?

Some people are sensitive to geometric patterns, which have strong contrasts of light and dark eg. stripes or checks. These might be on a TV or computer screen, or something in the natural environment, such as sunlight through trees, or through venetian blinds. Such contrasting patterns are more likely to be a trigger if they are moving, changing direction or flashing, rather than if they are still.
Common triggers for people with photosensitive epilepsy include:
  • television, video games, or computer graphics - the images that are on the screen
  • a television or other screen that flickers slowly - the flicker rate of the screen itself
  • strobe lights
  • sunlight coming through a line of trees
  • sunlight on water
  • looking out of the window on a train
  • looking at a moving escalator.
Ok, now bearing all this in mind...Why should I as a user who IS very sensitive to flickering light (They trigger severe migraines and if I am there for more than a few moments, I also risk vomitting) Have to be the one to shut off the user customizations. There are SO many different layouts to chose from that there is no need for such flamboyance and VIBRANCE! I love being able to see how others 'decorate' their profile and define themselves, but I avoid the 'flashers' and very rarely leave a message for them, even when I SEE that they are wonderful people who I would like to talk to.

well done dixie
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Old 07-30-2008, 04:14 PM   #82
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Default Re: Some Profile Pages Could Cause Seizures!!

View Post Originally Posted by Dixiecup
How common is photosensitive epilepsy?

Around one in 131 people have epilepsy and of these people,We have 100,256 members on this forum. (that means that we MAY have 7653 people on this forum who are Photosensitive) up to 5% have photosensitive epilepsy (this means that we have 383 people who WILL have a seizure from these pages!)
This is when seizures are triggered by certain frequencies of flashing lights or contrasting light and dark patterns such as stripes or checks.
Photosensitivity is more common in children and young people and is less commonly diagnosed after the age of 20.
Most of our members ARE in this median age group.
How can I tell if I am photosensitive?

Many people find this out because they have a seizure when exposed to flashing lights or patterns.
A tonic clonic (convulsive) seizure is the most common type of seizure to be brought on by photosensitivity, although this may vary from person to person. If a seizure happens due to photosensitivity, it will normally happen straightaway.
Some people with photosensitive epilepsy also have seizures that are not triggered by flashing lights or geometric patterns, while other people may only have seizures due to this trigger.
When an Electroencephalogram (EEG) is carried out, a flashing light test, called photic stimulation, will often identify if you are photosensitive. The light test is stopped if it looks like you might have a seizure.

What frequency of flashing light is most likely to trigger a seizure?

Between five and 30 flashes per second (hertz) are the common frequencies to trigger seizures, but this varies from person to person. (Most of these pages that Gingerly is talking about have intermittent flashes of one every TWO seconds, the potential for CAUSING a seizure is HIGH RISK in these cases.)
While some people are sensitive at higher frequencies than 30 hertz, it is not common to be sensitive below five hertz.
What patterns are most likely to trigger a seizure if I am photosensitive?

Some people are sensitive to geometric patterns, which have strong contrasts of light and dark eg. stripes or checks. These might be on a TV or computer screen, or something in the natural environment, such as sunlight through trees, or through venetian blinds. Such contrasting patterns are more likely to be a trigger if they are moving, changing direction or flashing, rather than if they are still.
Common triggers for people with photosensitive epilepsy include:
  • television, video games, or computer graphics - the images that are on the screen
  • a television or other screen that flickers slowly - the flicker rate of the screen itself
  • strobe lights
  • sunlight coming through a line of trees
  • sunlight on water
  • looking out of the window on a train
  • looking at a moving escalator.
Ok, now bearing all this in mind...Why should I as a user who IS very sensitive to flickering light (They trigger severe migraines and if I am there for more than a few moments, I also risk vomitting) Have to be the one to shut off the user customizations. There are SO many different layouts to chose from that there is no need for such flamboyance and VIBRANCE! I love being able to see how others 'decorate' their profile and define themselves, but I avoid the 'flashers' and very rarely leave a message for them, even when I SEE that they are wonderful people who I would like to talk to.

WONDERFUL POST...I had a friend in school whom had petite mal(not sure of the spelling) epilepsy...we went to a local Fair when it was in town...and we went on some rides...she had a blast...I took her on the Spider...which goes fast, twirls and goes up and down and around...the excitement and motion caused her to have 5 penny mow seizures on this ride during daylight...we went on again at night when the lights are bright and flikering fast...she had 8 seizures...her seizures were small and when she'd come out of one she'd always ask me what were we talking about...because she couldn't remember...but she LOVED that ride and couldn't get enough...we had a blast at the Fair...but she definately had more seizures because of the motion & the lights!

Last edited by Gingerly; 07-30-2008 at 04:36 PM..
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Old 07-30-2008, 04:38 PM   #83
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Default Re: Some Profile Pages Could Cause Seizures!!

View Post Originally Posted by Nascar20Fan
WONDERFUL POST...I had a friend in school whom had petite mal(not sure of the spelling) epilepsy...we went to a local Fair when it was in town...and we went on some rides...she had a blast...I took her on the Spider...which goes fast, twirls and goes up and down and around...the excitement and motion caused her to have 5 penny mow seizures on this ride during daylight...we went on again at night when the lights are bright and flikering fast...she had 8 seizures...her seizures were small and when she'd come out of one she'd always ask me what were we talking about...because she couldn't remember...but she LOVED that ride and couldn't get enough...we had a blast at the Fair...but she definately had more seizures because of the motion & the lights!
This is such wonderful information for us! Thanks so much Nascar, for going to
so much trouble to share it.
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Old 07-30-2008, 04:40 PM   #84
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Default Re: Some Profile Pages Could Cause Seizures!!

those kinds of profiles hurt my eyes VERY badly, but no seizures
Old 07-30-2008, 04:41 PM   #85
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Default Re: Some Profile Pages Could Cause Seizures!!

Some pages make me dizzy, it's crazy! Thanks for posting this and getting the word out!
Old 07-30-2008, 05:05 PM   #86
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Default Re: Some Profile Pages Could Cause Seizures!!

View Post Originally Posted by Gingerly
This is such wonderful information for us! Thanks so much Nascar, for going to
so much trouble to share it.
Ahhhhhhhh...thanks for the edit...when we were in grade school together she'd always call it penny mal & her grandfather had grand mal so I was never sure of the right spelling...but it sounded like penny mow
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Old 07-30-2008, 05:11 PM   #87
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Default Re: Some Profile Pages Could Cause Seizures!!

View Post Originally Posted by Nascar20Fan
Ahhhhhhhh...thanks for the edit...when we were in grade school together she'd always call it penny mal & her grandfather had grand mal so I was never sure of the right spelling...but it sounded like penny mow
Isn't it funny how kids hear things so differently.
Grande Mal is a seizure involving all 4 extremities. Petite Mal (French for small)
involves one side of the body or just upper or lower extremities.
( sometimes it's just a twitching motion.)

Last edited by Gingerly; 07-30-2008 at 05:19 PM..
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Old 07-30-2008, 05:22 PM   #88
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Default Re: Some Profile Pages Could Cause Seizures!!

thank you. we are proud we have such loving, and caring role models!

---------- kitteylover added 1 Minutes and 59 Seconds later ----------

oh , and please give Tea a hug or a pack of sugar!

Last edited by kitteylover; 07-30-2008 at 05:22 PM.. Reason: Automerged Doublepost
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Old 07-30-2008, 05:23 PM   #89
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Default Re: Some Profile Pages Could Cause Seizures!!

Like many others, flashing patterns can give me serious headaches, too......I mean, isn't looking at a screen of light enough?!
Old 07-30-2008, 05:46 PM   #90
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Default Re: Some Profile Pages Could Cause Seizures!!

Gingerly,

Thank you. You have brought tears to my eyes. I had seizures in my preteen years which was enough to keep me from obtaining a driver's license until I was eighteen. I was given an EEG, but apparently something other than the lights were triggering my "episodes". I was truly blessed to have grown out of the seizures even though we never found the source. (I of course was only concerned with makeup, boys, and Madonna at the time so I didn't pay much attention to my health except when it was failing me - and honestly most times I didn't realize what had happened.) I do have sensitivity to extreme motion and flashing (it reminds me of morning sickness - ugh!) even though I no longer have major problems. My best friend was diagnosed with epilepsy last year (she is *mature* like me) and is degenerating. Yes - she is on medication, but her quality of life has changed dramatically. She is not allowed to drive at all - which impedes her freedom an she has been cautioned against having children. (this is the worst part of her condition) Often in life we make poor choices or do things that seem harmless that end up having major effects on our lives or the lives of people around us. I applaud your empathy to this issue and your willingness to bring it to the forefront of everyone's attention! Thank you for your genuine concern and your beautiful heart!!
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